Begin with our research journey;
A blog message from a blog pal in yahoo;
盧先生他的小朋友患的是一種MOCO缺乏症(Molybdnum cofactor deficiency)
是罕見的病症 有些醫師甚至說不出病因 ?
請幫忙轉發信件或引用文章 讓他的小朋友早日找到能救他醫師 !
盧先生'S e-mail:re_fa_lou@umc.com
有消息可與他聯絡
Dear all,
If anyone can provide any information for help, please
contact with the father: UMC CRD_AM/AME/Metrology 盧瑞發 . UMC:03-5782258
Please also help to forward to your friends for any helpful information.
各位朋友大家好:
我的兒子盧勁丞(8個月大 )現在住成大病房 , 醫生幫他作核磁共振, 腦波, 腦超音波 ,
發現腦部已受損很嚴重 , 懷疑新陳代謝有問題(8,9 成以上), 體內毒素無法完全排出 ,
積在腦部 , 造成腦部受損嚴重, 身體一直再退化, 隨時有生命危險 , 請問大家國內外有
醫生可以治療嗎 ?
謝謝!
I formed a yahoo group to begin with.
This
is a group for Molybdenum cofactor deficiency research. Currently there
are 100 cases around the world without any cure or treatment in this
stage and most of these children die in early childhood. We are here as a
volunteer Group to help them through out medical research and
psychological and emotional support. We are seeking volunteer around the
world to work with us enable to save this 8 months old boy currently
lives in Taiwan. If you are interested in becoming our volunteer, please
email to aawscmocoproject@yahoo.com we are looking forward for you to
join us! Thanks again for your support.
AAWSC MoCo Project Coordinator
MOCO缺乏症(Molybdenum cofactor deficiency) dated May 24, 2007
Mr.
Lou works at UMC in Taiwan whose son was diagnosed Molybdenum cofactor
deficiency while he was just 5 months old and now he is 8 months old. Mr. Lou has seeking anyway to help out his son through out the world. We
would like you to give them any information if you could through out
medial treatment and research and thanks for your assistant. It
is sad that currently there is no treatment in Taiwan for his son and
they only rely on any health food and Mr. Lou has told me that Taiwan
medical team has no way of helping them at this point. There is a German study on animal only and not sure how long would take for human testing. We have set up a group discussion called Moco Project, please come to join us.
Volunteer can be doing as the followings:
- Medical or law consultant
- Research through current available documents
- Translation documents
- Home visit for Moco families
- Answering email or phone calls
- Contact medical profession teams
- Post news on other sites or blogs
- enable to communicate via email or phone
- Writing professional documents
- Medical Marketing Research
