Judge to decide sick baby's future
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看完心很痛, 又希望他不要受苦, 又希望他努力當生命鬥士, 求神來守護他.
The future of a seriously ill nine-month-old baby from Anglesey will be
put before London's High Court later.
Luke Winston-Jones has a rare genetic disorder and hospitals in Bangor
and Liverpool want to have the option of allowing him to die.
But Ruth Winston-Jones says her son is a fighter and she is determined
that doctors should keep treating him.
In a recent case, a judge ruled doctors should not resuscitate sick baby
Charlotte Wyatt if she stops breathing.
Luke was treated at Ysbyty Gwynedd in Bangor for most of his life before
being transferred to Alder Hey hospital two weeks ago for tests.
He has Edwards Syndrome, also known as Trisomy 18.
It is about a little boy who is doing extremely well with the illness
he has
Ruth Winston-Jones
Babies born with the disease have an average life span of less than two
months with fewer than 10% surviving more than a year.
Last week, the Royal Liverpool Children's NHS Trust and the North West
Wales NHS Trust made an application in London to be granted a hearing at
the High Court.
The hospital wants to be able to let Luke die should his condition
worsen, as they say treatment for him may become increasingly
aggressive.
Luke's mother Ruth is preparing for the hearing at the Family Division
of the court, in front of Judge Elizabeth Butler-Sloss.
"I am Luke's witness - I am a witness to his capabilities and will fight
it all the way," said Ms Winston-Jones.
She said she had been amazed by the interest in the case, which has seen
her doing a series of interviews.
"It has been non-stop, but it is not about me - it is about a little boy
who is doing extremely well with the illness he has."
Rebecca Burke, executive director of the Royal Liverpool Children's NHS
Trust, said: "This has been a difficult and rare course of action to
take but both trusts believe that it is in Luke's best interest to seek
the court's direction on this important and complicated matter.
"We acknowledge how strongly Luke's family feels and that this is a most
painful time for them."
Previous case
Luke's family's solicitor Tim Annett said Mrs Winston-Jones wants to
make the most of the time she has with her son.
"She doesn't feel that it is Luke's time and he therefore deserves every
chance at life," he said.
Earlier this month, a judge ruled doctors should not resuscitate a baby
who was born very prematurely if she stopped breathing.
Charlotte Wyatt was born weighing just one pound with serious heart and
lung problems, and her parents had argued doctors should revive her if
necessary.
But Mr Justice Hedley sided with Portsmouth Hospitals NHS Trust, which
had said her quality of life would be so poor she should not be Story from BBC NEWS:
http://news.bbc.co.uk/go/pr/fr/-/1/hi/wales/north_west/3761746.stm
